Showing posts with label sign language. Show all posts
Showing posts with label sign language. Show all posts

Saturday, 14 January 2012

A conversation

Last night, on the way home from his child minders, Will and I had a conversation. An actual, two way, conversation.

It went like this...

Me: (talking because I was carrying him and couldn't sign) Did you have a good day?
Will: Nodding, yes
Me: Did you go to the park, see the ducks?
Will: Nodding, yes
Me: What shall we do when we get home? Shall we have kisses and cuddles?
Will: Shakes his head, no
Me: Well what shall we do then?
Will: Signs 'TV'
Me: You want to watch TV?
Will: Nodding, yes, signs again TV. Then signs Daddy with a quizical look on his face
Me: Daddy?
Will: Nodding, yes
Me: No, Daddy is still at work, but Mummy will watch TV with you
Will: Nodding, yes, OK.

Freaking AWESOME. Our first ever conversation.

Saturday, 31 December 2011

Top ten of 2011

As the year grows to a close and everyone seems to be making lists of their highlights, lowlights or favourite kebabs (no, really) of 2011 I thought I might as well join in.

2011 did not start well for us, as you may well have read about here or here. But, it has got a lot better since and so I thought I would tell you all about that.

So here goes...my positives from 2011. And you know what, it's been a good one!

1. Getting pregnant and getting past the 12 week mark. We lost our second pregnancy at 10 weeks so the happiness and excitement of this one was tempered until we made it safely past the first trimester. With just 2 months to go, the realisation of our family expanding by one more little person is setting in and we are all so very excited and happy!



2. We got engaged. We had always talked about marriage and kids and felt under no pressure to do the former before the latter. However, after getting through all of this and becoming a much, much stronger couple and team for it, it became really important to us to make it official. The wedding is not until December 2013 because we want the kids to be old enough to be part of it but planning is well under way and we are very excited!



3. Our wonderful William, against all odds, started to talk. His first proper, identifiable word was duck. It changed our worlds more than you know. He seems to have given up on saying duck now but clearly says 'car', 'gone', 'cat', 'Parker' (our cat's name) and 'cook' and has a whole heap of other sounds that are just waiting to be turned into proper words when his wee head is ready. Yay for him!

4. We bought a house. A proper grown up, expensive, let's stay here for a long time, house. I love it. It is just the perfect size and shape for our family with heaps of parks nearby to help with that never ending wee boy energy.

5. We had our first proper family holiday. We have been away for weekends since Will was born, and for long haul holidays to see family but they never felt like holidays should feel. They were full of obligation and tension and often, tragedy, and family time was rare. But last summer we went here to stay on a farm and it was wonderful. It was easy, enjoyable, relaxing, stimulating and perfect family QT. And that was with morning sickness and torrential rain all week!



6. Will stopped pulling out his hearing aids or refusing to wear them at all and started keeping them in ALL DAY long other than nap time and bath time. The difference they have made to both his and our lives is immeasurable. Such a huge milestone for us. 



7. Will started to sign; to properly use signing as a language and communication tool. I wrote this list when he had almost 40 signs, it badly needs updated as he already has closer to 60. It has made life much easier and more fun and is hopefully keeping Will from feeling too frustrated at not yet mastering much speech.

8. We got a cat. Well, technically, he is just on loan while some friends of ours are away experiencing life on the other side of the world. I have never been so much of an animal person but the difference he has made to our life as a family is wonderful. Will adores him as you can clearly see from the fact that 2 out of the 5 words he can say are 'cat' and 'Parker'. They are still learning each others limits but I can tell that there is a mutual admiration / fascination there and a whole lot of love.


9. Shaun got a new job. I knew that his old job was hard, that the people were annoying and that he felt, and was, undervalued and taken advantage of. I thought that was just how working was but turns out it doesn't have to be! His new job is just the right amount of hard to be stimulating without losing sleep over it, the people are wonderfully crazy so far and he feels valued and in control. He keeps saying 'I am so much happier' which makes me feel a) awful for not realising how unhappy he actually was and b) so very grateful that he had the gumption to get up and move on. We are all happier for it!

10. This last one is not so much of a point as just the whole year of 2011. At the beginning of the year it felt like we could, very easily, fall apart as a couple, a family and individuals. And what happened was that not only did we not fall apart, we got stronger as a couple, a family and as individuals. We didn't just get through it, we got over it and we are happy, happier than we have been probably. And going into 2012 I feel so lucky to have everything that I have and so excited about everything that is coming.




But enough of this sappy nonsense, someone pass the champagne and let's toast the new year!! xx

Wednesday, 16 November 2011

D U C K

So, last week. A week ago today in fact, William said his first word. His first actual, proper, undeniable, every letter within, word.

He said duck. He said the d and the u and the ck.

And he was pointing to a picture of a duck at the time.

So he definitely said duck and he definitely meant duck. And did I mention that he said duck?


Speech. It brings up a BIG array of emotions, most of which I choose to bury deep.

So here's something you should know about me. I do not like to fail. I am a high achiever. I have high expectations of myself and I take it really hard if I let myself down. You can probably analyse my childhood or my parents or both and figure out where is comes from but it really doesn't matter. Because that's just how it is. I am a perfectionist and expect nothing less from myself than just that, perfection.

Because of this I have a coping mechanism. Again you can analyse and what not but this is just how it is. If I think I am going to fail at something I will not do it. I will not even try. Because I do not like to fail, and if I don't attempt something it dramatically reduces the chances of me failing at it. This may well be why I hate sport. why I don't play an instrument and why I never really forged a career before having kids. If I don't try these things, I cannot get them wrong. It is definitely why I was a wreck about breastfeeding when I was pregnant and determined not to do it. As it was that turned out alright for me and I was one of the lucky ones, as was my son as he benefited from 9 months of the stuff.

And so back to speech. Now this is not so much about trying or failing because it's not about me. But it's about expectations. I have NO expectations of William when it comes to speech. I know that in my heart and in my head I have accepted that he may never talk. Because it's easier for me that way. That way if he does never talk, it's OK. And if he does talk, well then, that's bonus for all of us. But I don't have emotions tied up in it. Ahem.

But then he said his first word. He spoke.

And now I do not know what to do with myself.

Because you see, this opens windows. It releases possibilities. It gives hope. I do not like hope any more than I like failure because one can only lead to the other. Right?

Wrong. Because this is my baby. And I have higher hopes for him than I have ever had for myself. Not expectations, I expect nothing for him or from him. But hopes. And dreams. And with him, hope cannot lead to failure. Because he cannot fail in my eyes. And he cannot let me down.

This parenting lark has turned my world upside down.

I'm trying lovelinks again this week, pop on over and check out who else is...

lovelinks

Friday, 4 November 2011

Signs

I have decided, partly to make myself feel better and partly from a purely administrative point of view, to keep a list of William's signs. I also want to publish them with photographic evidence but, as I'm sure you know, toddlers are not always camera compliant, so we will see how that works out.

Ok, so for now, at 04/11/2011 (at almost exactly 18 months) we have...

1. bye bye (waving)
2. dummy (pointing at mouth with one finger)
3. food (pointing at mouth with all fingers)
4. bottle (fist with thumb and little finger out, drinking from thumb)
5. please (tapping mouth with open hand)
6. thank you (tapping mouth with open hand)
7. yes (nodding)
8. no (shaking head)
9. dog (hands bent forward like paws in front of chest)
10. cow (fist with thumb and finger out, thumbs into side of head)
11. sheep (fists with just little fingers out, little fingers spiralling from sides of head)
12. pig (fist twisting nose)
13. horse (fists on top of one another, in front of body, up and down)
14. bird (thumb and index finger tapping together)
15. duck (thumb and rest of fingers tapping together)
16. fish (moving flat hand infront of body like fish)
17. cake (tapping clawed hand onto flat hand)
18. ball (making ball shape with both hands)
19. up (pointing up)
20. come (beconing to come with his hand)
21. lion (making a claw coming toward you)
22. giraffe (hand coming out of neck and moving upward)
23. elephant (fist coming down from nose, mimicing a trunk)
24. train (flat hands either side of body moving circularly)
25. car (mimic turning a steering wheel)
26. bus (mimic turning a larger steering wheel)
27. digger (pretend to dig with one hand)
28. banana (pretend to peel an imaginary banana)
29. orange (pretend to squeeze something round, next to your mouth)
30. grape (hold one hand as if dangling a bunch of grapes, use the other to twist from it bigger and down)
31. hot (go to touch something and pull hand away sharply, as if it is hot)
32. cook (pretend to hold a frying pan and shake back and forth)
33. gone (have claw hands open and together and then pull away to clasped hands, repeatedly)
34. ready (with two open hands, push your thumbs into your chest)
35. again (flick the index and middle fingers of one hand down with the rest curled into a fist)
36. plane (make a fist with your thumb and little finger protruding and move it around up high, like a plane)
37. balloon (make a ball shape with your hands as if coming from your mouth while blowing)
38. drink (make a cup with your hand and pretend to drink from it

I feel better already, my kid is smart! Time to get some snaps!

Tuesday, 1 November 2011

Mmmmmm

I have been trying to write a post for a while now about Will's speech. Or lack of, rather. He still doesn't have any words and it's taking it's toll on me. Since he started wearing his hearing aids consistently he has come so far and the difference when he has them in is breathtaking.

But we have stalled. Predictably, I guess. Nothing can continue along that steep trajectory of progress. He has more sounds than before. And more listening skills. More understanding. More signing. All so very positive but my heart longs for a word. Just one word.

We work so hard, every day. Repeating, playing, reading. Nothing.

Today we went to deaf playgroup. It was much better than the previous time. There was a new boy there that William took quite a shine to. They played beautifully together around the toy kitchen and then with some jigsaws. One of the jigsaws was animals, an area where Will's signing excels. He was showing each animal to the other boy and telling him what it was, through sign. Horse, giraffe, elephant. Monkey, dog, alligator.

The professionals that run the group were so excited that of course my heart swelled with joy and with pride. My baby, not only communicating but teaching.

We decided from the beginning to sign with Will and always knew he would sign before he spoke. In sign he has as many, if not more, words as the children we know with normal hearing.

And whenever he signs a new word, I get excited, I praise him, I hug him and I am genuinely happy for him and for us for making such a smart kid. Because he is super smart.

But I still long for speech. Just for one word so that I can be reassured that one day there will be more. Because as much as I boldly say 'Will may never talk' and 'we are learning and teaching sign because he is deaf, it's part of who he is', there is still a part of me that is desperate for him to be normal. The part of me that is worrying about nursery, school, friends, bullies, exams, careers, relationships, grandchildren. That part of me was given hope when he started wearing his aids. Hope when he started to make sounds that I thought would become words. Hope that he would grow up to be just like everyone else but with hearing aids in his ears.

But the truth is he won't ever be like everyone else. Because he is different. Because he is disabled. And as much as I know I need to embrace this fact. Some days, most days of late, I just want to embrace him and cry about it.

Tuesday, 4 October 2011

A disappointment

When William was 6 months old we went for the first time to what is officially called 'Toddler Group'. In our house it is called 'Deaf playgroup'. Because that's what it is. Playgroup for deaf kids, kids with hearing aids, and cochlear implants. Kids who communicate through sign language.

It was hard. I didn't want to be there, I didn't want a deaf kid. I didn't want to learn sign language, I didn't want my kid to have to. I didn't want to hear what the other Mums had to say. I wasn't interested in how it was going to get better, how successful their kids were, how 'normal' life could, in fact, be.

But we persevered. And it did get better. And William did achieve and develop. And life does, more often than not, have a semblance of normality about it. There was one Mum in particular that helped me a lot. That very first day, she was the only one who talked to me. She asked how I felt, how my partner felt, my parents, his parents. She discussed tests with me, told me her story. She made me feel welcome and comfortable and most importantly, she made me realise that life goes on. That this wasn't the end.

And deaf playgroup became a wonderful thing. It was first thing on a Monday morning, it got us up and out the house. It was a 30 minute walk so it got me exercising and in the fresh air. William adored being there and socialising with the other children. For a long time Monday afternoons were the only day he would nap for 2 hours. It was part of our routine and we loved it.

And then the Government had to make cuts. The NHS had to make cuts. Playgroup is every other week now, somewhere new. On paper it's just a different children's centre in a different area, fortnightly instead of weekly.

To us, it is now two buses or a 20 minute walk and then a bus to get there. It takes 50 minutes.
The room it is in is upstairs. I have to leave my pushchair outside, even in the rain. I have to carry our bags and William up 2 flights of stairs.
The room is much smaller. Today there were 6 children, all William's age and it was crowded.
There are leaflets at a reachable level so the kids can pull them off and get in trouble for it.
There is no kitchen to make a cup of tea, just a shelf for the juice that again the kids can reach and again get in trouble for spilling.
It's on every other Tuesday, so if you miss one week, it's a whole month between playgroups.

These all might sounds silly or small. But they make it harder. And combined they make it hardly worth my while. I am pregnant and tired, if I am going to travel 50 minutes somewhere and the same home, it has to be worth it. And today just made me feel like it no longer is. Which is a real shame because it used to be the highlight of our week. And I really would have liked to have given the support that Mum gave me to another Mum with a newly diagnosed deaf baby.

Have budget cuts affected you and your family? How does it make you feel?

Monday, 3 October 2011

I have to tell you this story

This is my favourite piece of perfect communication William has carried out yet.

My parents were here this weekend and when Will woke up I took him into their bedroom to see them. After a bit of pottering he found my Dad's car keys on the side. He showed them to my Dad and my Dad signed 'car' to him (pretended to turn a steering wheel). William did it back and my Dad nodded. "Yes, car".

Then it got really cute. William pulled at my Dad until he was out of bed and sitting up. Then he went and got my Dad's shoes for him and gestured that he had to put them on. OMG just the cutest thing. Then he pulled at my Dad's hand again, to the stairs, down the stairs, to the front door, out into the street and into the car.

Last time my Dad was here he had let William sit in the front seat of his car and pretend to drive. I just find it the most beautiful thing that not only did he remember (it was 3 weeks ago), but he managed to get him to do it again just from finding a set of keys.

Alas I didn't get a picture because it was 7am and as happy as my Dad and Will are to walk the streets in their PJs at that time, me not so much. But I will never forget it. It was William's first full conversation.

Sunday, 25 September 2011

Playground Parenting

Will has recently just started to really enjoy playgrounds. He loves to climb up the stairs, down the stairs, up the stairs, down the stairs. Occasionally the slide or the swing get a look in but at the moment it's mainly about the stairs.



And other kids. It's just me at home all day so Will doesn't get a whole heap of time with other children. Since going to the park on a regular basis we have both learnt about other kids. Will thinks they are all wonderful and is desperate to play, interact, talk and share. Me, on the other hand, I'm not so sure. I think they are all horrid. Well not all, but most, definitely the majority. Basically any that don't belong to my friends!

It's an experience all parents must go through and not one I have enjoyed. Seeing that kid get a little bit too close to yours. Seeing the moment their hand goes up to push them over, their face gets close to scream in their face. It invokes a protective feeling I had no idea could be so strong. I remember the first time I felt it. It was when I took Will for his 8 week immunisations. Watching that nurse stick those needles into my baby and seeing him cry because of it made my skin crawl with rage. Even though my head knew that it was better than him getting any of the nasty diseases they were protecting him from, my heart wanted me to jump over the desk, wrestle the nurse to the ground, pull out her hair and jab the needle in her eye. I had never worried that I didn't love my baby, but that experience made me sure that I did.

The park is like that. If a kid gets in his face, I want to push them over. If they dare to touch him, I want to knock them out. I thought I liked kids, all kids but ones that look like they might hurt mine make me not so friendly!

Of course most of them are polite and play nicely and have plenty of time to talk to and play with my Will. But there are ones that don't want to share, don't want to play and don't want to talk to a kid that grunts and signs rather than talks. Recently another wee boy shouted right in Will's face "I can't understand you!". Oh my, it took all my strength just to say to him, quietly "Please don't shout at him".



But all the while, Will was smiling. You see, he loves other children. If they kick bark at him, he things it's hilarious. If they scream in his face, he thinks they are communicating with him. If they try and pick him up to move him out of their way, he thinks they are just being affectionate. If they run away from him, he thinks they are playing chase. And that's what I've learned these past few weeks. It's all me. The tension, the fear, the anger, it's all me. I am so worried about Will being picked on and bullied about his hearing aids I go to these parks on the super defensive. But they are just parks. And they are just kids, doing what kids do. They aren't treating him any differently than any other baby that might happen to get in their way. And you know what? They don't even notice his hearing aids.

Tuesday, 13 September 2011

Our trip to the zoo

Last weekend we went to the zoo because they had a 'special children's day'. I hate that they called it special children's day and I hate whoever and whatever turned the word from special to special.

Anyway, we went. We got to go in a special entrance and that was enough to send me over the edge. I could not stop myself from having a little cry behind my sunglasses about how we shouldn't be here, how unfair it all was. But then we were in and I had pulled myself together.

And what a wonderful day we had. Here are some of the highlights:

  • All the displays we went to were accompanied by sign language.
  • We always got to sit in the front row
  • Will kept his hearing aidS (he wears both now, woohoo!) in ALL day.
  • It was so good to be around other special children. Seeing other children with hearing aids in makes it all feel a lot more normal which I appreciate massively
  • Spending time as a family
This last one I cherish the most. We are very, very busy people for some reason and so time as a threesome almost never happens. It was so wonderful to laugh and smile and sign and play and eat as our little family unit.  And that, my friends, is what I found truly, truly special about our day at the zoo.

Wednesday, 7 September 2011

He understands!

Communication with children is tricky. You can never be sure if they can hear you or if they are ignoring you or if they just don't understand you. Communication with William is trickier. More often than not he cannot hear you and so is always 'ignoring' you and is a long way from understanding you, words at least (his communication through Sign Language is coming on wonderfully).

So this week we had a breakthrough. I had a friend visit with her 6 month old son. We had been home all day, Will was bored which turned into manic as soon as they arrived. He ran around, showing off, being loud and aggressive (you know the usual cabin fever score). Anyway, this culminated in him hitting the baby hard on the head with a toy. The poor baby cried very loudly and his Mummy picked him up and gave him a cuddle and he soon settled but William was obviously disturbed by the consequences of his actions. He looked over in mortification and I said to him 'go and give him a cuddle and say sorry'. And that's just what he did. He got up off of my lap, walked over to the baby and put his arms around him. Broke. My. Heart.

Now I'm not sure if he heard me - he has been wearing his hearing aids pretty much all day since we turned that corner recently - and understood my words.
Or if he understood the situation and transferred his knowledge that Mummy and Daddy cuddle him when he cries so that's what he had to do here.

Either way it shows that he is growing up, and he understood something and acted on it and that is a big step for us. Exciting!